Why this is my battlefield
My hope in joining the Marseille Summer Camp was to hear more patient safety issues from clinicians. How do they respond when something goes wrong? What functionalities do they expect if health information technology may help? What technology do they not like? – As poorly designed technologies may become a burden instead of being helpful. How do they learn from lessons? All of these questions mean a lot to me because I am on my way to becoming a medical informatician and a researcher who commits to improve patient safety and quality of health care through data science and information engineering.
A lesson I learned from the past three days is empathy. I told Dan the second day that ‘I am now learning to stand in a nurse and a physician’s shoes to think.’ How did I make that? I sit with fellow students and faculty watching films where… Continue reading
Notes on consent form
I learned from today’s film that how conversation can save a life. Later on during the discussion section, consent form became a hot topic as it supposes to help patients making better decisions. Below I would like to share some information and thoughts that might somewhat help with the discussions over consent form.
1. Information representation and exchange
1.1 Problem statement
Data largely depends on paper-based instruments, which constraints data management and information exchange. My team members, during the discussion, expressed an interest in electronic consent; but view accurate electronic capture of informed consent data as a challenge.
1.2 Solutions
We need a medical coding system to define terminologies and semantic relations that are used in consent forms. This system can be something like Unified Medical Language System (UMLS, https://www.nlm.nih.gov/research/umls/). This system should be computer accessible and should be able to link to any existing medical language systems in… Continue reading